Helpline: Huntington's Disease Support

Huntington's disease is an inherited and deadly condition that destroys someone's mental and physical capabilities. Coping with or caring for a loved one with Huntington's disease can be very challenging. It is essential to know that you are not alone and that there is plenty of help readily available to you and your family. That is why ExtendaTouch is here to help!

ExtendaTouch Huntington's disease caregiver support group will enable you to connect with actual people who experience the same daily challenges. ExtendaTouch is entirely free and is packed full of stories, friendly advice, and resources that can help you feel part of a positive group. All types of people gather to share resources and tips that can help everyone live their best life while providing care for their loved ones.

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HUNTINGTON'S DISEASE. I cared for my mentally disabled Uncle who has Huntington's Disease. I would consider myself his primary caregiver because I was the one who spent mostly every day with him. Hanging out, running errands, telling stories, cooking and eating meals, etc. We got very close and I was in a position full of trust and support.
I care(d) a total of 5 years for a male
I cared for my uncle with Huntington's disease for a while before I moved. I would like to talk to someone who has experience in caring for someone with Huntington's and what I should be expecting to come in the future
I care(d) a total of 6 years for a male