Dementia Helpline: Dementia Support

Dementia is an all-inclusive term associated with a loss of cognitive function related to several neurological conditions. It describes different medical conditions and a group of symptoms affecting memory loss, cognitive problems, and psychological changes. Most causes of dementia are Alzheimer's; however, many different diseases can cause it as well. Dementia-related conditions affect millions of individuals globally.

A dementia diagnosis creates great uncertainty and the road ahead is confusing. It affects the person with the condition and everyone around them. There are many resources that will provide help and support for everybody involved. Contacting a dementia helpline for yourself or a loved one can be challenging, but ExtendaTouch is here to help connect you with other family caregivers.

Whether you want to share your own experiences about managing dementia or learn more about the challenges and successes others have experienced, the ExtendaTouch dementia helpline will enable you to connect with actual people who experience the same daily challenges. ExtendaTouch is completely entirely free. You will find other caregivers who can share lessons learned, tips, and information. We will have direct links to resources that can help you feel part of a helpful resource. Caregiver gather to share resources and opportunities to help everyone live their best life while providing care for their loved ones.

How can ExtendaTouch help me?

The ExtendaTouch support group consists of unpaid family caregivers across the entire U.S. ExtendaTouch provides online tools for its members to share information and support; perhaps even helpful tips about:

  • Coping with symptoms
  • Preserving skills and function
  • Dementia caregiver support
  • Common signs of dementia
  • Maintaining a healthy lifestyle

You can feel safe at ExtendaTouch because it is an anonymously private service to express yourself openly or learn from other caregivers about your most pressing questions. ExtendaTouch is here to assist you in meeting other family caregivers to find information and support. ExtendaTouch doesn't provide medical advice, diagnosis, or treatment.

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I have years of experience I can share if it will help.
I care(d) a total of 6 years for a female
I have years of experience I can share if it will help.
I care(d) a total of 7 years for a malefemale
I care(d) a total of 1 year for a female
I care(d) a total of 1 year for a malefemale
I care(d) a total of 25 years for a malefemale
andyc, ExtendaTouch facilitator
My mom had dementia. After a brain scan, she was diagnosed with Alzheimer's. I was her advocate as she became more forgetful. Luckily, just her short term memory was absent until the end of her life, and we were able to reminisce together.
I care(d) a total of 6 years for a female
I care(d) a total of 1 year for a malefemale
I have some experience in this subject I can share.
I care(d) a total of 3 years for a male
TheTechGuy, ExtendaTouch facilitator
First my mother-in-law was diagnosed with Alzheimer's, as was indicated by the brain scan that showed the signs of plaque build-up. She was already showing signs of dementia living on her own. She became a shut-in at the facility where she could eat with the others or on her own. She, like the others, started eating together, until everyone at the table had died over the years. Then you don't want to go through the loss again. That's what she told me. I was a secondary caregiver using the Alexa Show to video chat from a distance. Creating a ritual, they love early enough can provide a connection through most of the transitions into the late stage. Trivia was her thing. She enjoyed playing it and found very few questions she didn't know the answers. Playing every day for a few minutes to a few hours, randomly from a distance, was possible because of the Video Chat! It changed how participation from far away could evolve into something that felt like everyone was in the same room visiting a person who needs that daily! I can suggest from this experience to find something they love and repeat it often with them. Use technology that's available whenever possible too! Just ask if you need to know where to start.
I care(d) a total of 5 years for a female
I care(d) a total of 1 year for a male