Helpline: Hospice Support

Hospice Caregiver Support
Getting the service of a hospice caregiver is an essential element of caregiving. Because most caregivers are family members or friends with little or no caregiving training or experience. But your lack of experience shouldn't keep you from extending quality caregiving to your loved one.

It is a good idea to get the support of a hospice team. You can use hospice and palliative care to supplement the care you already provide at home. While the hospice team members will regularly check on the care recipient, you will continue to be the primary caregiver. Their services are helpful, but they cant replace family caregivers.

For more information, reach out to our fellow caregivers at ExtendaTouch, who have experience working with the hospice team. They will share with you their knowledge of choosing and working with hospice caregivers.

Duties of Hospice Caregivers
A hospice caregiver's responsibilities can include many tasks, from hopping grocery to cooking meals and handling doctor appointments to managing finances. You, as a primary family caregiver, can decide the duties you want to do yourself and those you wish to assign to the hospice member. The hospice team members can even help manage pain and provide personal care to the patient, besides helping with bathing and changing bed sheets.

A hospice caregiver will support you emotionally and physically by taking over many of the overwhelming responsibilities. Hospice team members are also an excellent source of caregiving education. Ask them questions and address your concerns so your loved one can get better care.

Many members of the ExtendaTouch support group have experience working with hospice caregivers. If you have any questions in mind or want more information or advice, you can always request contact with our fellow members and start communicating.

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I have some experience in this subject I can share.
andyc, ExtendaTouch facilitator
I experienced hospice with my grandmother, my sister, my father, my mother and many individuals during the AIDS crisis in San Francisco during the 1980s and 1990s. I'd be happy to chat with anyone about my experience. I have years of experience I can share if it will help.
TheTechGuy, ExtendaTouch facilitator
Hospice is a lifesaver for those of us who are there when loved ones pass. The month before and the weeks and days before as the body is systemically falling apart, Hospice understands the signs and how to administer drugs to make the process painless for your loved one and removes the unnecessary trauma that comes from watching someone die without drugs. It is like tourcher for everyone without Hospice helping. How is the hospice services where you live?
I work in animal hospice.
I found my local hospice agencies very helpful in providing home care with aides coming in to care for my brother. They also found others in the community who had volunteered services in my home, such as massage and other personal comforts.
I was the sole caregiver for my husband for several years as his liver disease deteriorated his body leading up to the last 9 months of his life became more 24/7 support.